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Fibromyalgia
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Guai-Support Group
For help
and support with the guai protocol for FMS, please join the
Guai-Support Group's discussion list and post your questions there. I
do not answer such questions privately, sorry. Information about joining
the group and managing your subscription can be found
here.
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Support Groups and Web Sites
If you are in New Zealand and wanting to
contact a local FMS support group, you should in the first instance contact
Arthritis New Zealand and enquire
there about groups in your area. Many groups are listed on their web site
- click on the 'service centres' button at the top of their page and then click
on the map in the region you are in. The information that comes up will
include how to contact the office in that area as well as details of the various
groups run by them.
Also, please feel free to
contact me;
I can help to point you in the right direction if you're needing assistance, and
also I may be able to put you in touch with a fellow FMS person in your area.
I have also come across several support group
lists, where you subscribe and
then receive emails that are sent to the list address. Some lists are not very
active, others have 50 to 100 messages a day. I suggest organising your
email so that mail from each list is directed to a folder created especially for
that list, to keep it separate from your personal mail (see my
Computer Help page for directions). These lists also often
have an archive facility, which enables subscribers to research topics that have
been discussed in the past.
The original International
Guai-Support
Group list, owned and moderated by Tesa Marcon, has been in action since
October 1997. Huge resources are available here, including huge lists of salicylate-free products and ingredients.
I work voluntarily for Tesa as her List-Owner's Assistant, as well as a
*Sal-Mentor,
and Posting Buddy. The web site is freely available to all-comers, however the
list is private - you need to
become
a member to gain access. This is a friendly, supportive environment
where you can discuss any aspect of the guai protocol, as well as other aspects
of FMS and co-existing conditions.
The list and
archives were originally hosted by St John's University, but late in 2005 saw a
move to L-Soft as a result of a change in policy at St John's.
Another list formerly hosted by St John's University is
FMS-Recovery , which is available for discussing any topic relating to FMS.
This is also a private list,
click
here to join; there is no web site for this group, other than the archives
access page. I'm not a current member of this group, but I have been a
member in the past.
If you are in the UK, try
The UK-FMS-Guai Website for more region-specific help and support; the list
attached to this web site is private,
click here to join.
I am not a member of this group.
In Australia: the
Aussie
CFS/FMS Guai Group is a nice, supportive environment to chat about anything
to do with FMS and guai. It has members from around the world, not just
Australia and New Zealand, and is one of the friendliest groups I've come
across. This is a private group; you need to be a member to access both
the web pages and the list discussions.
Click here to join.
* trademark of the
Guai-Support
Group
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